ABOUT US
What is
Independent Living?
Most Americans take for granted opportunities they have regarding living
arrangements, employment situations, means of transportation, social and
recreational activities, and other aspects of everyday life.
For many Americans with disabilities, however, barriers in their communities
take away or severely limit their choices. These barriers may be obvious, such
as lack of ramp entrances for people who use wheelchairs, lack of interpreters
or captioning for people with hearing impairments, lack of brailed or taped
copies of printed material for people who have visual impairments. Other
barriers - frequently less obvious - can be even more limiting to efforts on the
part of people with disabilities to live independently, and they result from
people's misunderstandings and prejudices about disability. These barriers
result in low expectations about things people with disabilities can achieve.
So, people with disabilities not only have to deal with the effects of their
disabling condition, but they also have to deal with both kinds of barriers.
Otherwise, they are likely to be limited to a life of dependency and low
personal satisfaction.
This need not occur. Millions of people all over America who experience
disabilities have established lives of independence. They fulfill all kinds of
roles in their communities, from employers and employees to marriage partners to
parents to students to athletes to politicians to taxpayers-an unlimited list.
In most cases, the barriers facing them haven't been removed, but these
individuals have been successful in overcoming or at least dealing with them.
Definition of
Independent Living
What is independent living? Essentially, it is living just like everyone
else-having opportunities to make decisions that affect one's life, able to
pursue activities of one's own choosing-limited only in the same ways that one's
non-disabled neighbors are limited.
Independent living should not be defined in terms of living on one's own, being
employed in a job fitting one capabilities and interests, or having an active
social life are aspects of living independently. Independent living has to do
with self-determination. It is having the right and the opportunity to pursue a
course of action. And, it is having the freedom to fail-and to learn from one's
failures, just as non-disabled people do.
There are, of course, individuals who have certain mental impairments which may
affect their abilities to make complicated decisions or pursue complex
activities. For these individuals, independent living means having every
opportunity to be as self sufficient as possible.
Independent living isn't easy, and can be risky. But millions of people with
disabilities rate it higher than a life of dependency and narrow opportunities
and unfulfilled expectations.
How Centers for
Independent Living differ from other service providers
There are many different types of organizations which serve people with
disabilities - state vocational rehabilitation agencies, group homes,
rehabilitations hospitals, sheltered workshops, nursing homes, senior centers,
home health care agencies, and so forth. These organizations provide valuable
services and are important links in the network of services that help people
with disabilities maintain independent lifestyles.
What makes centers for independent living very different from these other
organizations is that centers have substantial involvement of people with
disabilities making decisions and delivering services. Why this emphasis on
control by people with disabilities? The basic idea behind independent living is
that ones who know best what services people with disabilities need in order to
live independently are people with disabilities themselves.
The Independent
Living Movement
In the late 1960's and early 1970's, this idea led people with disabilities from
around the country to take active roles on local, state, and national levels in
shaping decisions on issues affecting their lives. A major part of these
activities involved formation of community-based groups of people with different
types of disabilities who worked together to identify barriers and gaps in
service delivery. To address barriers, action plans were developed to educate
the community and to influence policy makers at all levels to change regulations
and to introduce barrier-removing legislation. To address gaps in services,
another method of service delivery was conceived - one which has people with
disabilities determining kinds of services essential to living independently,
has people with disabilities actually providing these services.
The earliest center was formed in 1972 in Berkeley, California, soon followed
that same year by centers in Boston and Houston. In 1978, following effective
advocacy by people with disabilities and their supporters all over the country,
federal legislation was passed that provided funding to establish centers for
independent living (Title VII of the Rehabilitation Act). Today, there are
centers in virtually every state and U.S. territory.